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Open Surveys

Enrollment Consent to Participate

Your continuing patient record, will begin here with your signed informed e-consent form

Complete Enrollment

Data Repository

Module One
Where you live
Diagnosis history

Complete Module

COVID-19 Vaccine Survey

A self-reported survey for tracking the reaction of Superficial Siderosis patients to the COVID-19 vaccination for inclusion into a report from Massachusetts General Hospital on the reaction of patients with neurological disorders.

Take Survey

Castleman Disease Collaborative Network (CDCN)

Chan Zuckerberg Initiative

The ROADBLOCK Project Patient Survey
The goal is to understand the state of drug repurposing in rare diseases and create a shared, free resource that will make it easier to pursue successful drug repurposing
October 26, 2021

  • Superficial Siderosis Research Project Survey
    • Open 01.21.2020
    • Close 02.05.2020 – Closed