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Surveys

Open Surveys

Enrollment Consent to Participate

Your continuing patient record, will begin here with your signed informed e-consent form

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Data Repository

Module One
Where you live
Diagnosis history
Symptoms

Complete Module

COVID-19 Vaccine Survey

A self-reported survey for tracking the reaction of Superficial Siderosis patients to the COVID-19 vaccination for inclusion into a report from Massachusetts General Hospital on the reaction of patients with neurological disorders.

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Castleman Disease Collaborative Network (CDCN)

Chan Zuckerberg Initiative

The ROADBLOCK Project Patient Survey
The goal is to understand the state of drug repurposing in rare diseases and create a shared, free resource that will make it easier to pursue successful drug repurposing
Deadline:
October 26, 2021

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  • Superficial Siderosis Research Project Survey
    • Open 01.21.2020
    • Close 02.05.2020 – Closed