Contact Us

We’re here to help and answer any questions you might have about the Superficial Siderosis Patient Registry. We value your input and appreciate your interest in our mission.

Email: You can reach us via email at We strive to respond to all inquiries as quickly as possible.

Phone: If you prefer to speak with us directly, you can request a callback at +1 903.605.7043. Please note that our availability may vary due to the volunteer nature of our organization.


The Superficial Siderosis Patient Registry is volunteer-run. The website, REDcap database, and secured servers are supported through donations to the Superficial Siderosis Research Alliance. We are deeply grateful for the generosity of our donors, which allows us to maintain these crucial resources and continue our work.

Your participation and support are vital to our mission. Thank you for being a part of our community.